Tuesday, October 7, 2008

Nolan and Ethan updates

Nolan had his appointments with Ears, Nose, Throat (ENT) and audiology this morning. ENT recommends tubes in his ears and removal of his adnoids (spelling) so we will be doing that in two weeks on the 22nd. He is on antibiotics because his left ear is still infected. His audiology visit determined that he has hearing loss in his left ear most likely from the ear infection. They will do another hearing screen after his tubes have been in place for a few weeks...on Nov 10th.

In the meantime, this evening the got a urine sample from Ethan so they can check for infection pre-op. His IV is still flushing so I am happy...they don't have to stick him again as long as that is open. They will do a cath on him as I mentioned previously either Fri or early next week. We will have surgery most likely mid to late next week. I'm not ready for this. I don't think you can be ready for this. The urine sample caught me by surprise. I knew that they needed one but I didn't know it was coming down to this close.

I am tired of everything being up in the air. I hate this waiting game. I know that we are working around pre-op procedures and also surgery schedules, but I'm almost ready for this to just be over. I am relishing every minute I'm getting to spend with Ethan because I can't help but think that I won't get to snuggle with him like he likes for a while...He likes to be held chest to chest snuggled up on your shoulder. With a sternotomy, he will not like that for a while and might not again...it might irritate him too much. I just want a magic pill...

No one should have to go through this...especially a baby who has done nothing to cause such great amounts of heart disease...

5 comments:

Marissa said...

Oh Amanda, know that my prayers are with EJ, you, and your family. I pray that Heavenly Father will bless you with the peace and strength you need at this time and that the surgeons hands will be guided during their process.

JAMIE RBZ said...

I think you'll be able to snuggle him again how he likes. And it will be all the more special when you can.

Stay strong, you are doing so well! You have our prayers.

Rachel said...

Your entry made me cry... I hate having to see you go through this trial. I can't imagine having to watch my child endure this. You are a strong and faithful woman. I pray for Heavenly Father to bless you with peace and comfort during this tough time. I also pray for little Ethan that he will remain strong and heal quickly. We love you!

Sunshine said...

Amanda...you will be amazed at the difference after Nolan has his tubes and adnoids out. Tru had tubes twice, adnoids removed and his tonsils out (all seperate procedures) but he could talk and hear afterwards so much better and it was amazing! I have been following the blog but don't always have time to comment. You and your family are in our prayers. Thank you for your example of faith through hard times.

Jenn said...

You WILL be able to snuggle him again...chest to chest! That is still Carsyn's favorite snuggly position...after two surgeries!

(I haven't commented, but I've been reading!)