It is an almost definite thing that Ethan will not be home for Halloween. So, we took some really good pictures of him in his costume today so that he will have pictures in his costume even if he gets his surgery and is in CVICU for Halloween. Aren't they precious...what a ferocious dragon...but please...try not to be too scared.
We had a really good day today. Mom and Dad got me out of the hospital for a while and Richard stayed with Ethan. I needed to get out so bad. 17 days in the hospital is way too much. Recharged and ready for another week or so...
3 comments:
Amanda~a week is too long in the hospital~I'm glad you got out today! Is there anything I can do for you or your family? What size clothes does Ethan wear?
Oh and I'll try not to be SPOOKED!
The only thing that anyone can do right now is keep the prayers coming. They have kept him in the best circumstances of any child with Heterotaxy Syndrome that I've seen in the hospital so far...You could try giving mom and call to see if she needs anything. I am so grateful for all of the help everyone is willing to give. Hopefully we will be home before Thanksgiving...
OH...Ethan is in a 0-3 still...hopefully he will grow into a 3-6 soon, but if he gets into surgery soon, he will not get a whole lot bigger for a while.
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