Sunday, February 28, 2010
Well..Ethan desatted down to the low seventies on the 26th so we were admitted for observation overnight. This also sped up our next step...which is thank goodness a cath instead of open heart...to next Tuesday. They will balloon and/or stent open his pulmonary artery. They will also take care of any little connections that his body has made to try to get to normal...which Ethan's heart will never be...more updates when I know more...Should be getting a call in the next 24 hours for specifics on the time and prodcedure for getting to the hospital...
Friday, February 26, 2010
We got the MRI results back yesterday. Not so good news. Ethan doesn't have the scar tissue obstructing his right branching pulmonary artery. The artery itself is narrowed for a length causing about 10% of the blood flow to go to his right lung and 90% to his left instead of a 50/50 mix that is normal. this issue will have to be addressed in the next few months and I am terrified. His inferior vena cava and liver veins are undersized and we were told at his first surgery that he would need to be 4 or 5 years old before they would be able to successfully complete a fontan surgery. If there is nothing that the cath lab can do to bur Ethan some more time then that fontan will have to be moved up considerably making it's chance of success go down dramatically. Please continue your personal prayers for Ethan as well as calling any prayer groups that you may belong to. If you are LDS, please place his name on your local temple prayer roll. I've seen miracles. I would like another one.