Friday, March 12, 2010
It's been too long since I updated. Things have been busy getting back into the home schedule and getting my older kiddo's nerves calmed down after the MRI, emergency hospital admission, and Cath. Everyone is settling down and things are running as smoothly as you would expect with the stress level. Ethan got to come home the day after his cath but through a comedy of errors (that's the nice way of putting it) we weren't able to get him into echocardiography. So he went home without one. His second x-ray came in beautifully and he is doing well. We did find out when we talked with his cath surgeon that it wasn't just his pulmonary artery that is undersized. HIs whole right lung and all the arteries leading to it are very undersized. This means we have a brand new diagnosis of hypoplastic right lung to add to his already two line long heart diagnosis. This explains why his 02 desaturates with exertion. Now that he has his stent he is slowly getting faster about pinking up for us when he sits down. In the past few days he has started to sit down when he is gasping instead of just keeping on. He's learning his limits. Which makes me happy and sad at the same time. No 19 month old should have to limit his activity. We'll just have to keep a close eye on him like we have done since the day he was born to watch for even small changes in his saturations or his activity. There is really nothing else they can do other than hope that the stint will encourage that lung to grow more now that it has better blood flow. We're now one step closer to his Fontan surgery, but have also staved it off because of the bandaid that we just got in the cath lab. I'm so grateful that he hasn't had to have his Fontan early as his chance of survival at this point is just flat scary. I am also very grateful for the prayers and well wishes that I have received through my internet connections. I couldn't do this without my Heavely Father and you!