Well, today I am getting packed for an overnighter in Houston. I so wish it was for something fun! We have to report to day surgery tomorrow at 6 am for Ethan's IV sedation for his dental restorations. They are either going to cap or pull his molar that is causing him so many issues. This is the last roadblock before the cath lab. We are tentatively scheduled for May 31 but it is possible that they will move him up depending on how tomorrow goes and availability.
I usually try to stay very positive and upbeat on the blog...but I just don't want to do this. I don't want to have to go tomorrow...I don't want to take him to the cath lab...and mostly I don't want to have a surgeon cut him open later this year!!! I am trying (and mostly failing) to keep my emotions in check.
For today I am doing laundry and getting ready to go. Pandora radio is saving me. Be still my soul just came on and it helps. I just want a calm life. But if it were not hard, would I know the calm when it came. Please keep Ethan in your prayers tomorrow. He has always done really well with sedation and I would really like for that trend to continue!
4 comments:
Oh Amanda! I'm sorry! If it helps, I have assisted on a lot of kid's sedation dental surgery...and they usually go pretty quickly, and with very few problems. I know your situation isn't the norm...but it will be ok. My thoughts and prayers will be with you tomorrow:)! Love, Darcy
Just know that our family is sending prayers your way from Atlanta, GA. Our son Tyler has the Fontan in the future also. Thank you for sharing your journey with other heart families like us...it brings me hope & encouragement to know about other families traveling a similar path.
~Tanya Thomas
I'm so sorry :( Hope everything went ok!
Hi
My name is Jenna and I came and I came across your site. Ethan is an amazing, courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. He will be in my thoughts, and so will you. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com
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