Last weekend Ethan had the honor of attending a friend's first birthday. Abby is an amazing little girl that we met while Ethan was recovering from his surgery last October. She has many issues with her heart and has had three open heart surgeries. She spent 7 months out of her first year in the hospital. She slept through her first Christmas and New Years...she has struggled every day to just be a little girl. Her parents are amazing. They have struggled, prayed, laughed, and cried with Abby every step of her journey. I feel blessed to know this sweet family and look forward to that day when we are all before the Lord and Ethan and Abby both have hearts that are perfect. When they can run and not be weary...
Happy Birthday Abby!!!
Johnny continues to remain stable. Due to the complexity of his heart defect a transplant is currently his only option. His parents are taking it one day at a time. I will not ask you to pray for him to receive a heart because I cannot ask you to pray for another child to die, but I am asking that if another child is going to leave this earth due to the Plan of our Father in Heaven, that Johnny be allowed to receive his heart. There is a subtle difference there. Heart transplants are painful on both the giving and receiving ends. I am not looking forward to that and hope that technology keeps progressing in such a way that Ethan will not have to be on that list when his Fontan ultimately fails...as they all do... I am asking for prayers for Johnny's family as they navigate the difficult journey that has been placed before them...they too are a very special family.
On to Ethan news...he is doing amazing. His heart no longer races when he is active so hsi circulation has caught up with his activity level. I equate it with someone beginning a running program. the first few times you run you get worn out a lot faster but evenutally you can run miles without stopping...it is the same with Ethan...he can now pull up to his feet and stand holding on to something and not work his heart too hard...we are very blessed. He has also finally decided that solids are a must instead of a treat...he gets very put out with me if I don't feed him when he decides he is hungry...He was fascinated with Abby and her ankle bracelet...he thought it was the most beautiful thing he had ever seen...I can't wait for them to go to prom!!! ;0)
Well...that's all for now...thank you for all your support and prayers...
