Echo appointment

Ethan had his sedated echo day before yesterday and he couldn't be doing better. His glenn looks good, his PA band is not too tight or too loose, and he has "trivial" amounts of leakage in his valves. So...no more enalapril!!! We are down to amoxil to keep from getting a bacterial infection and aspirin...

Ethan hated the Chloral Hydrate. He only slept for about 45 minutes on it and then woke up angry. After an hour of fussy screaming he had been cleared to go home and seen Dr. Altman that couldn't be more pleased...he fell back asleep around 230 and didn't wake up for three hours! He's back to his normal growling self and can stand without momma's help against a chair without falling down...

Also...a friend of Ethan's was born today. Welcome to the world Johnny...he has ethan's diagnosis along with a few more complications but seems to be doing well. Visit him on carepages at Johnny's Way...

We don't have another cardiology check up until September 14th....we will have chest x-rays and an EKG and an echo if needed...

I can talk!!!

Ethan can say da da...ma ma...and by by by by by by...he has tried to wave and is being absolutely adorable...

We are off of enalapril for the time being. Dr. Altman wants to see how his heart valve is handling being off it for his echo next week. I'm getting antsy...all you heart parents will completely understand how unsettling it is to go in for a check up appointment. Everything seems to be going well, but we won't know for sure until we get that echo next week. This will also be his fist sedated echo. That has me nervous...flashbacks of surgery... He has had a few episodes of his hands and feet turning light blue but they have coincided with activity. I'll be glad to have this appointment over and done and be back home. I'm taking a packed bag just in case...I'm a little paranoid. I'll update after our appointment!!!